Practical advice and key actions in new GIRFT handbook for optimising the care of patients with IBD

illustrative image of the intestine with the words optimising care for patients with inflammatory bowel disease (IBD)

GIRFT has developed a new handbook pulling together examples of innovative practice, proven solutions and practical actions to help optimise the care of NHS patients with inflammatory bowel disease (IBD).  

The handbook – aimed at clinicians and operational colleagues working in IBD services – is informed by evidence-based publications and multidisciplinary expertise from across the gastroenterology and general surgery specialties.  

The handbook also contains an updated GIRFT pathway for IBD.  

The new resource offers clear and concise messages, action checklists and links to useful resources for several key areas of focus: the organisation of services, research and training, the multidisciplinary team, access to specialist input, diagnostics, medical management, surgery, data and metrics. 

For example, it is stressed that patients referred with suspected IBD should have access to specialist review or attend a ‘straight to test’ procedure within four weeks, in line with the NICE quality standard for IBD, and that services should undertake regular audit to monitor achievement of this target. 

Elsewhere, with regard to medical management, the handbook makes clear that personalised management plans and flare plans are important tools to support patients to manage their symptoms and should be developed with the patient using shared decision-making principles. 

Appendices are also included on the management of specific conditions such as acute severe colitis and acute Crohn’s Disease, and other important themes like the transition from child to adult services. 

IBD, or inflammatory bowel disease, is an umbrella term for a group of conditions that cause inflammation in the digestive tract, leading to abdominal pain and diarrhoea. Figures from the charity Crohn’s and Colitis UK suggest there are around half a million people with IBD in the UK. 

IBD is a long-term condition with periods of relapse and remission, meaning it can significantly affect people’s quality of life. It has been shown that early and co-ordinated care leads to treatment beginning more quickly and the appropriate consideration of surgery, helping to reduce emergency hospital admissions and readmissions.  

“Across the country, there are many examples of effective and innovative IBD services. However, during our GIRFT visits we have seen that clinical guidance is not consistently implemented. This handbook aims to address that gap by sharing learning, highlighting proven solutions and describing key actions that can be applied locally. In doing so, it supports the national ambition set out in the 10 Year Health Plan, to take the best of the NHS to the rest of the NHS.”

"Effective management of IBD relies on a holistic, integrated approach, with clinicians working collaboratively - both with each other and with patients - to deliver personalised, evidence-based care. This handbook is clear that effective shared decision-making with patients must be embedded throughout the patient pathway as it is key to ensuring the delivery of high-quality care.”

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